World Haemochromatosis Week

In the first week of June each year we join with members of Haemochromatosis International, the international alliance of haemochromatosis support groups, to create a worldwide, coordinated haemochromatosis awareness campaign in each member country. Using all forms of media, displays, and other activities, this week is an opportunity to focus attention on haemochromatosis and the risk of inherited iron overload.

The key messages of the week are:

• Haemochromatosis is the most common genetic disorder in Australia
• If you are the 1 in 200 affected, it can cause serious health problems
• Ask your doctor to find out if you are storing too much iron

Get your local politician involved – TEST Poster

You can download and email the TEST poster to your local councilors and State and Federal MPs. Ask if they would post a photo of themselves holding the poster to their social media using the hashtag #WHW2022 during World Haemochromatosis Week saying they support haemochromatosis awareness. Let them know haemochromatosis is the most common genetic disorder affecting Australians and make sure they understand its impact if undetected and untreated. You may discover that your representative or someone they know is also affected.