What is Haemochromatosis?
Clinical guidelines and useful links, patient resources,
April 10th, 2018
Haemochromatosis Conference
25 & 26 August 2018 Newcastle NSW: People living with haemochromatosis, their families, researchers and health professionals will gather together in Newcastle for one weekend in August to talk about the past, present and future of haemochromatosis. The 3rd Biennial Australasian Haemochromatosis Conference is on over the weekend of 25 & 26 August 2018 in Newcastle, NSW. […]
May 31st, 2018
World Haemochromatosis Week 4 – 10 June 2018
World Haemochromatosis Week will be observed from 4-10 June 2018. We are joining with other members of Haemochromatosis International, the international alliance of haemochromatosis support groups, to support a worldwide, coordinated haemochromatosis awareness campaign in the first week of June each year. Using the media, displays, and other activities, the week is an opportunity to […]
May 4th, 2018
Clinical Trail Opportunity Westmead Sydney NSW
A clinical trial of Hepcidin for people with haemochromatosis is about to start at Westmead Hospital. Hepcidin is a protein that regulates iron in the body. People who are on stable venesections with a ferritin of >150 and saturation of >45% are eligible to participate. During the trial participants continue with their normal venesections while having weekly subcutaneous injections of […]
January 12th, 2018
New haemochromatosis resources for health professionals
Two new hereditary haemochromatosis resources have been published online recently; one for nurses and one for general practitioners Haemochromatosis for Nurses here is an online educational activity developed by Haemochromatosis Australia for Australian Primary Health Care Nurses Association (APNA). The course has been developed to provide an understanding of haemochromatosis – including the symptoms, diagnosis, […]
August 28th, 2017
Annual Report 2017
Haemochromatosis Australia has published its annual report for the year ending 30 June 2017. The report includes information on: • President’s annual report • Finance and membership • Our support activities for people with haemochromatosis • Our resources for health professionals • Our activities raising awareness in the community • Professional engagement and research We […]
June 12th, 2017
Illawarra Region – Haemochromatosis Information
Illawarra / Wollongong – we need your help! We will be setting up haemochromatosis information displays at Coledale Markets Sunday 25th June, and Bunnings Wollongong Sunday 6th and Saturday 12th One of our experienced volunteers, Tony Marshall would like some help to run the displays. This would be a great opportunity to meet others with […]
January 16th, 2017
The GP Red Book and Hereditary Haemochromatosis
Haemochromatosis Australia is delighted to have been consulted during the preparation of the 2016 edition of ‘Guidelines for preventative practice in general practice, 9th edition ’ (commonly referred to as ‘The GP Red Book’) , and to be acknowledged as a contributor. The GP Red Book is a primary source of information for general practitioners. […]
October 26th, 2016
Review of support and information for people with haemochromatosis
Helping with Haemochromatosis Report Our recent “Helping with Haemochromatosis” project has come to an end. We’d like to thank everyone who has participated in this project during the last few months. Selka Beyerle, a social work student at the University of Tasmania conducted a review of the information and support available through Haemochromatosis Australia and […]
