What is Haemochromatosis?
Clinical guidelines and useful links, patient resources,
August 27th, 2019
App to iron out wrinkles in haemochromatosis treatment
My Iron Manager – the App for people with haemochromatosis New technology is now available to support people with haemochromatosis who regularly need to manage iron levels in their body to remain healthy. Haemochromatosis is an inherited condition passed down in Northern European bloodlines (especially Celtic and Viking) that affects 1 in 200 Australians who […]
September 11th, 2019
Public Information Session – Perth
Public Information Session – Perth Saturday 19 October 2.00 pm State Library of WA, Great Southern Room (fourth floor)25 Francis St, Perth Cultural Centre, Perth Haemochromatosis Australia will host a free public haemochromatosis information session. Come along and hear our guest speakers speak about the condition and answer your questions. This is a great opportunity […]
August 16th, 2019
Volunteer Information Day – Melbourne 25 August 2019
Haemochromatosis Australia will host a volunteer training and discussion event from 8.30 am – 3 pm in Melbourne. If you are interested in volunteering for Haemochromatosis Australia and attending the event, please contact HA President Dianne Prince dianne.prince@ha.org.au or 0418 494 113. Registration before the day is essential.
July 8th, 2019
Coming Events – Melbourne 24 & 25 August 2019
Public Information Session – Melbourne Saturday 24 August 2019 1.30pm – 3.30pmLibrary at the Dock (Performance Space), 107 Victor Harbour Promenade, DOCKLANDS Haemochromatosis Australia will host a free public haemochromatosis information session in the Performance Space at the Library at the Dock. Come along and hear our guest speakers speak about the condition and answer […]
June 3rd, 2019
World Haemochromatosis Week 3 – 9 June 2019
World Haemochromatosis Week will be observed from 3-9 June 2018. We are joining with other members of Haemochromatosis International, the international alliance of haemochromatosis support groups, to support a worldwide, coordinated haemochromatosis awareness campaign in the first week of June each year. Using the media, displays, and other activities, the week is an opportunity to […]
May 17th, 2019
Australian leads Haemochromatosis International
Raising global awareness of the most common genetic disorder that not enough people know about is the purposeful mission of Dr Dianne Prince, from Sydney, in stepping up this month as incoming president of Haemochromatosis International. As president of Haemochromatosis Australia, Dr Prince is currently overseeing a social media awareness campaign of the inherited condition […]
February 23rd, 2019
Ready Set Go … the race is on to see which state can save the most lives Red25
Make your blood count. Join our Red25 group and ask your family and friends to do the same. It doesn’t matter if you are a therapeutic donor or a regular donor, we need you to show your support. To get a started and register with your state’s Red25 team, join ‘Haemochromatosis Australia – (YOUR STATE)’ […]
May 4th, 2018
Clinical Trail Opportunity Westmead Sydney NSW
A clinical trial of Hepcidin for people with haemochromatosis is about to start at Westmead Hospital. Hepcidin is a protein that regulates iron in the body. People who are on stable venesections with a ferritin of >150 and saturation of >45% are eligible to participate. During the trial participants continue with their normal venesections while having weekly subcutaneous injections of […]
