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What is Haemochromatosis?
What is Haemochromatosis?
Haemochromatosis explained in simple terms plus helpful videos.
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Resources for GPs & Health Professionals
Clinical guidelines and useful links, patient resources, online training and latest news. Find out more...
Support, advocacy and health promotion group for Australians affected by haemochromatosis.
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No Australian will suffer harm from haemochromatosis.
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We have received enquiries from people with hereditary haemochromatosis (HH) asking whether the current Coronavirus (COVID-19) vaccines are safe for people with HH. Although there have not as yet been any specific medical trials focussed on Covid-19 vaccines in people with HHs, there is no evidence that indicates any higher risk to people with haemochromatosis […]
We are joining with other members of Haemochromatosis International, the international alliance of haemochromatosis support groups, to support a worldwide, coordinated haemochromatosis awareness campaign in the first week of June each year. Using the media, displays, and other activities, the week is an opportunity to focus attention on Haemochromatosis and the risk of inherited iron […]
The 2021 Health Services Blood Challenge commences on April 1, ending June 30. Last year, Haemochromatosis Australia Lifeblood Teams contributed the highest number of blood donations to the 2020 Health Services Blood Challenge. Help us do it again this year! Make your blood count. Join our Lifeblood Team and ask your family and friends to do […]
The launch of the first episode of our new IRON MATTERS audio podcast series was a highlight of World Haemochromatosis Week. The podcasts were produced as education resources primarily for a health professionals’ audience with GPs and practice nurses particularly in mind. However anyone with an interest in delving into haemochromatosis in a little more […]
Make your blood count. Join our Lifeblood Team (previously called Red25 group) and ask your family and friends to do the same. If you are a therapeutic donor or a regular donor, we need you to show your support. To get a started, register with your state’s Lifeblood Team team, join ‘Haemochromatosis Australia – (YOUR […]
My Iron Manager – the App for people with haemochromatosis New technology is now available to support people with haemochromatosis who regularly need to manage iron levels in their body to remain healthy. Haemochromatosis is an inherited condition passed down in Northern European bloodlines (especially Celtic and Viking) that affects 1 in 200 Australians who […]
Need to know more about the therapeutic venesection program and the associated High Ferritin online App provided by the Australian Red Cross Blood service? This comprehensive document from the Blood Service provides the answers. Read all about it here
Since haemochromatosis is an inherited disorder, family members of someone diagnosed with haemochromatosis are at increased risk of also having the condition. It is important to alert these family members and tell them what they need to do about it. Explaining haemochromatosis to others might seem a difficult task, especially if you have just been […]