About Us

ABOUT HAEMOCHROMATOSIS AUSTRALIA

ABOUT HAEMOCHROMATOSIS AUSTRALIA

Haemochromatosis Australia is a non-profit registered charity run entirely by volunteers. We are the support and advocacy group for people affected by haemochromatosis, their families and loved ones. We aim to provide support for people with the disorder and to increase awareness of haemochromatosis in the general public and the medical and health professions. We have been operating for over 30 years and continue to grow and expand our activities.

Our Vision

No Australian will suffer harm from haemochromatosis.

Our Mission

As the primary advocacy group for Australians affected by haemochromatosis we provide support and promote awareness, early diagnosis and research.

Our Values

We believe that people with haemochromatosis are entitled to:

  • The same quality of life and life expectancy as other Australians
  • Diagnosis before symptoms occur
  • Well informed health and medical services
  • Easy access to the knowledge, support and services they need

OUR OBJECTIVES

OUR OBJECTIVES

1. Support people with haemochromatosis

We provide support and up to date information to people with haemochromatosis and their families to assist them to manage their condition. We provide opportunities to meet other individuals and families experiencing haemochromatosis.

2. Community Awareness

We promote awareness in the community about haemochromatosis.

3. Professional awareness

We raise awareness in medical health professionals in order to improve the rate of early diagnosis and treatment

4. Health Policy Improvement

We influence and advocate appropriate health policy relating to haemochromatosis.

5. Research

We support, encourage and maintain a high interest in research that will contribute towards our vision.

6. Administration and governance

We operate efficiently and with high ethical standards while growing our membership and influence.

GOVERNANCE AND STRATEGY

Committee Members

OUR PATRONS

Margaret Rankin AM RN GradDipHthSc

Marg was appointed Patron in 2010. She was our founding president and retained that office for over 20 years until she stepped down in 2010. Marg remained an active member of the management committee until 2013. She is highly respected in haemochromatosis matters in Australia and overseas. Her contribution to haemochromatosis support was recognised with a Member of the Order of Australia (AM) medal in 2005. Marg also has extensive volunteering history with other not for profit groups, especially the RSPCA. Marg lives in Brisbane, Queensland.

Emeritus Professor Lawrie Powell AC, MD PhD FRACP FRCP (London)

Professor Powell is Emeritus Professor, UQ Centre for Clinical Research, The University of Queensland, Brisbane, Australia. Lawrie is a leading authority on liver disease and haemochromatosis. He is a medical advisor to Haemochromatosis Australia. Lawrie has been of immense support to Haemochromatosis Australia since its very early days.

OUR PROFESSIONAL ADVISORS

We have a panel of eminent researchers in the field of Haemochromatosis to provide guidance and advice.

Professor Lawrie Powell AC

Emeritus Professor, UQ Centre for Clinical Research, The University of Queensland, Brisbane, QLD

Professor John Olynyk

Consultant Gastroenterologist and Hepatologist, Fiona Stanley Hospital, Fremantle WA and Dean of Clinical Research School of Medical and Health Sciences, Edith Cowan University, WA

Professor Martin Delatycki

Director of Clinical Genetics, Austin Health, Director, Bruce Lefroy Centre for Genetic Health Research, Murdoch Childrens Research Institute Melbourne VIC

Professor Darrell Crawford

Associate Dean (Strategic Development) Faculty of Medicine and Mayne Professor and Head, Academy of Medicine, The University of Queensland Director of Research, Gallipoli Medical Research Foundation, Greenslopes Private Hospital, QLD

Professor Greg Anderson

Co-ordinator Chronic Disorders Program, Head, Iron Metabolism Laboratory, QIMR Berghofer Medical Research Institute, Brisbane QLD

Professor Nathan Subramaniam

Professor in Biomedical Sciences (Molecular Medicine), Faculty of Health, School of Biomedical Sciences, QUT, QLD

Professor Graeme Carroll

Rheumatologist and Associate Professor of Medicine, University of Notre Dame, WA

Dr Peter Bentley

Senior Medical Officer, Australian Red Cross Blood Lifeblood

Dr Katie Goot MBBS BSc FACRRM

Haemochromatosis Australia volunteer GP Liaison Officer and medical advisor

Dr Barbara de Graaff PhD

Postdoctoral Research Fellow in Health Economics, Menzies Institute of Medical Research, University of Tasmania