What is Haemochromatosis?
Clinical guidelines and useful links, patient resources,
August 27th, 2019
App to iron out wrinkles in haemochromatosis treatment
My Iron Manager – the App for people with haemochromatosis New technology is now available to support people with haemochromatosis who regularly need to manage iron levels in their body to remain healthy. Haemochromatosis is an inherited condition passed down in Northern European bloodlines (especially Celtic and Viking) that affects 1 in 200 Australians who […]
August 16th, 2019
Volunteer Information Day – Melbourne 25 August 2019
Haemochromatosis Australia will host a volunteer training and discussion event from 8.30 am – 3 pm in Melbourne. If you are interested in volunteering for Haemochromatosis Australia and attending the event, please contact HA President Dianne Prince dianne.prince@ha.org.au or 0418 494 113. Registration before the day is essential.
July 8th, 2019
Coming Events – Melbourne 24 & 25 August 2019
Public Information Session – Melbourne Saturday 24 August 2019 1.30pm – 3.30pmLibrary at the Dock (Performance Space), 107 Victor Harbour Promenade, DOCKLANDS Haemochromatosis Australia will host a free public haemochromatosis information session in the Performance Space at the Library at the Dock. Come along and hear our guest speakers speak about the condition and answer […]
June 3rd, 2019
World Haemochromatosis Week 3 – 9 June 2019
World Haemochromatosis Week will be observed from 3-9 June 2018. We are joining with other members of Haemochromatosis International, the international alliance of haemochromatosis support groups, to support a worldwide, coordinated haemochromatosis awareness campaign in the first week of June each year. Using the media, displays, and other activities, the week is an opportunity to […]
May 4th, 2018
Clinical Trail Opportunity Westmead Sydney NSW
A clinical trial of Hepcidin for people with haemochromatosis is about to start at Westmead Hospital. Hepcidin is a protein that regulates iron in the body. People who are on stable venesections with a ferritin of >150 and saturation of >45% are eligible to participate. During the trial participants continue with their normal venesections while having weekly subcutaneous injections of […]
January 12th, 2018
New haemochromatosis resources for health professionals
Two new hereditary haemochromatosis resources have been published online recently; one for nurses and one for general practitioners Haemochromatosis for Nurses here is an online educational activity developed by Haemochromatosis Australia for Australian Primary Health Care Nurses Association (APNA). The course has been developed to provide an understanding of haemochromatosis – including the symptoms, diagnosis, […]
August 28th, 2017
Annual Report 2017
Haemochromatosis Australia has published its annual report for the year ending 30 June 2017. The report includes information on: • President’s annual report • Finance and membership • Our support activities for people with haemochromatosis • Our resources for health professionals • Our activities raising awareness in the community • Professional engagement and research We […]
June 12th, 2017
Illawarra Region – Haemochromatosis Information
Illawarra / Wollongong – we need your help! We will be setting up haemochromatosis information displays at Coledale Markets Sunday 25th June, and Bunnings Wollongong Sunday 6th and Saturday 12th One of our experienced volunteers, Tony Marshall would like some help to run the displays. This would be a great opportunity to meet others with […]
