What is Haemochromatosis?
Clinical guidelines and useful links, patient resources,
October 26th, 2016
Review of support and information for people with haemochromatosis
Helping with Haemochromatosis Report Our recent “Helping with Haemochromatosis” project has come to an end. We’d like to thank everyone who has participated in this project during the last few months. Selka Beyerle, a social work student at the University of Tasmania conducted a review of the information and support available through Haemochromatosis Australia and […]
September 30th, 2016
Haemochromatosis education at pharmacies
This year during Haemochromatosis Awareness Week in August we worked with the Pharmacy Guild and Pharmaceutical Society Australia to raise awareness among pharmacy staff of haemochromatosis and the potential for iron overload from this common genetic condition. The momentum has been maintained in September with the publication of articles about haemochromatosis in the two leading […]
August 11th, 2016
Wonthaggi VIC – Community Contra Dance for Haemochromatosis
There are lots of ways to raise awareness of haemochromatosis. in your local community. This is a fun way to do that while having a great time with friends, family and neighbours. Ellen Hubble, a Wonthaggi local, is organising a ‘Community Contradance’ to help raise awareness of haemochromatosis in the local community – and have a lot […]
August 2nd, 2016
OVERLOAD Art Exhibitions Tasmania
We are very fortunate to have a team of dedicated volunteers and talented artists in Tasmania willing to help raise awareness of haemochromatosis through their art. Once again there will be two fabulous art exhibitions running through Haemochromatosis Awareness Week (8 – 14 August) and beyond. Many of the works have an OVERLOAD theme, telling […]
August 2nd, 2016
Haemochromatosis Awareness Week
Haemochromatosis Awareness Week runs from 8 – 14 August this year. It’s a time to focus attention on haemochromatosis and for people like you and me to raise awareness of the condition in the community. Why do we need to do that? Because haemochromatosis is still diagnosed far too late for many people. Others struggle for years […]
June 30th, 2016
Conference Brisbane 6 – 7 August 2016
The 2nd Biennial Australasian Haemochromatosis Conference is only five weeks away.. The conference will be held at the QIMR Berghofer Medical Research Institute, Herston, Brisbane on the weekend of 6 -7 August. Speakers We now have two international keynote speakers and a strong line up of Australian experts confirmed as speakers. Professor John Crowe from […]
June 21st, 2016
Paul Cox Dies of Liver Cancer at 76
Paul Cox, the great Australian film director and prolific independent film-maker has lost his battle with liver cancer at the age of 76. Paul was diagnosed with liver cancer in 2009 and only a last-minute liver transplant saved his life. At that time he was diagnosed with haemochromatosis and advanced iron overload which had led […]
March 30th, 2016
Melbourne Haemochromatosis Research Study Recruiting
Would you like to help with a haemochromatosis research study? The HFE Fibrosis Study team, a Melbourne based research study team are recruiting volunteers to take part in a study to validate the use of non-invasive tests for liver fibrosis in people who have genetic haemochromatosis and high levels of serum ferritin. If you have […]
