- Support Us
- About Us
- News / Media
What is Haemochromatosis?
What is Haemochromatosis?
Haemochromatosis explained in simple terms plus helpful videos.
Find out more...
Resources for GPs & Health Professionals
Clinical guidelines and useful links, patient resources, online training and latest news. Find out more...
Support, advocacy and health promotion group for Australians affected by haemochromatosis.
Find out more about us...
You can help our volunteer run group achieve our vision that
No Australian will suffer harm from haemochromatosis.
Join, renew or donate....
A clinical trial of Hepcidin for people with haemochromatosis is about to start at Westmead Hospital. Hepcidin is a protein that regulates iron in the body. People who are on stable venesections with a ferritin of >150 and saturation of >45% are eligible to participate. During the trial participants continue with their normal venesections while having weekly subcutaneous injections of […]
Two new hereditary haemochromatosis resources have been published online recently; one for nurses and one for general practitioners Haemochromatosis for Nurses here is an online educational activity developed by Haemochromatosis Australia for Australian Primary Health Care Nurses Association (APNA). The course has been developed to provide an understanding of haemochromatosis – including the symptoms, diagnosis, […]
Haemochromatosis Australia has published its annual report for the year ending 30 June 2017. The report includes information on: • President’s annual report • Finance and membership • Our support activities for people with haemochromatosis • Our resources for health professionals • Our activities raising awareness in the community • Professional engagement and research We […]
Illawarra / Wollongong – we need your help! We will be setting up haemochromatosis information displays at Coledale Markets Sunday 25th June, and Bunnings Wollongong Sunday 6th and Saturday 12th One of our experienced volunteers, Tony Marshall would like some help to run the displays. This would be a great opportunity to meet others with […]
Haemochromatosis Australia is delighted to have been consulted during the preparation of the 2016 edition of ‘Guidelines for preventative practice in general practice, 9th edition ’ (commonly referred to as ‘The GP Red Book’) , and to be acknowledged as a contributor. The GP Red Book is a primary source of information for general practitioners. […]
Helping with Haemochromatosis Report Our recent “Helping with Haemochromatosis” project has come to an end. We’d like to thank everyone who has participated in this project during the last few months. Selka Beyerle, a social work student at the University of Tasmania conducted a review of the information and support available through Haemochromatosis Australia and […]
This year during Haemochromatosis Awareness Week in August we worked with the Pharmacy Guild and Pharmaceutical Society Australia to raise awareness among pharmacy staff of haemochromatosis and the potential for iron overload from this common genetic condition. The momentum has been maintained in September with the publication of articles about haemochromatosis in the two leading […]
There are lots of ways to raise awareness of haemochromatosis. in your local community. This is a fun way to do that while having a great time with friends, family and neighbours. Ellen Hubble, a Wonthaggi local, is organising a ‘Community Contradance’ to help raise awareness of haemochromatosis in the local community – and have a lot […]