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What is Haemochromatosis?
What is Haemochromatosis?
Haemochromatosis explained in simple terms plus helpful videos.
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There are lots of ways to raise awareness of haemochromatosis. in your local community. This is a fun way to do that while having a great time with friends, family and neighbours. Ellen Hubble, a Wonthaggi local, is organising a ‘Community Contradance’ to help raise awareness of haemochromatosis in the local community – and have a lot […]
We are very fortunate to have a team of dedicated volunteers and talented artists in Tasmania willing to help raise awareness of haemochromatosis through their art. Once again there will be two fabulous art exhibitions running through Haemochromatosis Awareness Week (8 – 14 August) and beyond. Many of the works have an OVERLOAD theme, telling […]
Haemochromatosis Awareness Week runs from 8 – 14 August this year. It’s a time to focus attention on haemochromatosis and for people like you and me to raise awareness of the condition in the community. Why do we need to do that? Because haemochromatosis is still diagnosed far too late for many people. Others struggle for years […]
The 2nd Biennial Australasian Haemochromatosis Conference is only five weeks away.. The conference will be held at the QIMR Berghofer Medical Research Institute, Herston, Brisbane on the weekend of 6 -7 August. Speakers We now have two international keynote speakers and a strong line up of Australian experts confirmed as speakers. Professor John Crowe from […]
Paul Cox, the great Australian film director and prolific independent film-maker has lost his battle with liver cancer at the age of 76. Paul was diagnosed with liver cancer in 2009 and only a last-minute liver transplant saved his life. At that time he was diagnosed with haemochromatosis and advanced iron overload which had led […]
Would you like to help with a haemochromatosis research study? The HFE Fibrosis Study team, a Melbourne based research study team are recruiting volunteers to take part in a study to validate the use of non-invasive tests for liver fibrosis in people who have genetic haemochromatosis and high levels of serum ferritin. If you have […]
Haemochromatosis Australia is proud to announce the date and venue for the next biennial haemochromatosis conference. The conference will be held at the QIMR Berghofer Medical Research Institute, Herston, Brisbane on Saturday and Sunday 6 & 7 August 2016. The theme of the conference will be ‘the future of haemochromatosis: linking research and life’. The […]
Haemochromatosis Australia is pleased to announce that the first Victorian Haemochromatosis HealthPathway has now been released for Melbourne. This adds to a number of Haemochromatosis HealthPathways already published or under development in NSW and ACT. Congratulations to HealthPathways Melbourne. Haemochromatosis Australia is assisting and encouraging Medicare Locals in other areas to include haemochromatosis in their […]