What is Haemochromatosis?
Haemochromatosis Awareness Week runs from 11 – 17 August this year. It’s a time to focus attention on haemochromatosis and for people like you and me to raise awareness of the condition in the community. Why do we need to do that? Because haemochromatosis is still diagnosed far too late for many people. Others struggle for years […]
Approximately 85,000 Australians have or will develop iron overload due to a genetic fault in the HFE gene; however the vast majority of these people will have only moderately elevated levels of iron.
Mi-iron is a research study which aims to measure the effect of reducing moderate iron overload back to the normal range in people with haemochromatosis and to determine whether it is necessary to do this.
Three new high-quality haemochromatosis education videos have been launched by haemochromatosis Australia.Launch This time last year, we asked for help from our members and supporters through a special appeal to raise enough funds to produce three high quality education videos to help raise awareness of haemochromatosis. The production journey has taken longer than we expected, […]
How much does haemochromatosis cost an individual in terms of health costs, productivity and well-being? How much does haemochromatosis cost the Australian health system and society in general? Would you like to help us find the answer? Researchers at the Menzies Research Institute Tasmania are conducting a study into the costs related […]
Haemochromatosis Australia was delighted to be advised by Senator Catryna Bilyk that the Minister for Health, Tanya Plibersek, has approved a grant of $30,000 to help us to run the first Australian Haemochromatosis Conference during 2014. Announcing the $30,000 grant, Senator Bilyk said the little-known condition was, in fact, the most common genetic disorder among […]