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We are joining with other members of Haemochromatosis International, the international alliance of haemochromatosis support groups, to support a worldwide, coordinated haemochromatosis awareness campaign in the first week of June each year.

Using the media, displays, and other activities, the week is an opportunity to focus attention on Haemochromatosis and the risk of inherited iron overload.

Key messages

The key messages of the week are:

  • Haemochromatosis is the most common genetic disorder in Australia
  • If you are the 1 in 200 affected, it can cause serious health problems
  • ask your doctor, find out if you are storing too much iron.

How can I help?

Spread the Red

Australia is going red as some of our well-known buildings and landmarks including the MCG and AAMI Stadium in Melbourne, Brisbane’s Story Bridge, Sydney’s Bankwest Stadium, Queensland Country Bank Stadium in Townsville, the National Carillon, Canberra, Trafalgar Bridge, Perth and many more light up red for World Haemochromatosis Week. Even the Big Banana at Coffs Harbour will switch colour for us. You can find a full list on our website here.

You can help spread the word about Painting Australia Red on social media. Take a photo of a red-lit location in your town and post it to your favourite social media. Remember to like and follow our pages. Please @mention us (@haemochromatosis – Facebook, @haemochromatosisAustralia – Instagram, @HaemAus – Twitter) so we can see your posts. Remember to use #WHW2021.

We will be running a competition to reward your efforts with three randomly selected posts receiving a gift. You don’t have to be a great photographer – just have a go.

Use your social media – Facebook, Instagram, Twitter, YouTube

Download our social media image of the Week logo or our ‘TEST” image and post to your favourite social media. Please use the hashtag #WHW2021.

World Haemochromatosis Week logo

Like and Share our Facebook page and posts.

Like and Follow us on Instagram – Haemochromatosis Australia.

Follow, Like and Retweet us on Twitter @HaemAus.

Post your own social media messages and use the hashtag #WHW2021

Visit our YouTube channel – HaemochromatosisAust and Like and Share our videos and jingle.

Hold a Facebook Fundraiser during the week.

You can email the ‘TEST’ poster to your local councillors and State and Federal MPs. Ask if they would post a photo of themselves holding the poster to their social media using the hashtag #WHW2021 during World Haemochromatosis Week saying they support haemochromatosis awareness. Let them know haemochromatosis is the most common genetic disorder affecting Australians and make sure they understand its impact if undetected and untreated.  You may discover that your representative or someone they know is also affected.

Write to your local paper or ring your local radio station and tell them about haemochromatosis.

Support us

Join Haemochromatosis Australia or make a tax-deductible donation. We are a volunteer organisation reliant on membership subscriptions and donations to raise awareness and provide support to those diagnosed with the condition.

For just $40 a year (pensioners $25) you can help us in our mission to ensure No Australian will suffer harm from haemochromatosis.

Join Us or Donate

Media Enquiries

Media Release – World Haemochromatosis Week 2020

Iron researcher goes rusty

Community Service Announcement – 30 second audio MP3 clip

Radio stations may play these audio clips (unedited) on air at any time. We would appreciate a brief email letting us know you have used the CSA to feedback@ha.org.au.

Download the CSA file as .wav file: Haemochromatosis CSA Audio WAV

Download the CSA file as .mp3 fileHaemochromatosis CSA Audio MP3

Download the text of the CSA: CSA Script 2018 – Haemochromatosis Australia

Haemochromatosis Jingle (30 second song)

Download the Haemochromatosis Jingle (.wav file): Haemochromatosis 30-second jingle

Resources and More Information

Posters

You can also download and print a copy from the links below

Poster (A4) TEST poster

Poster (A4) Are you pumping too much iron?

Poster (A4) Tired and aching joints

Poster (A4) Celtic ancestry

Social media tile I Support World Haemochromatosis Week

Social media tile TEST

or you can email publications@ha.org.au or give us a call on 1300 019 028.

Booklets and Brochures

You can download copies here:

• Haemochromatosis Your Questions Answered

• Haemochromatosis brochure

or you can email publications@ha.org.au or give us a call on 1300 019 028 if you would like us to send you bulk print copies.

Videos

You can access our videos on YouTube or contact us and we will post you a DVD if you would like to play the videos during an event or in a display.

You can view our short (2 minute) animated video explaining haemochromatosis on YouTube here.

OVERLOAD Art Exhibition

This art exhibition is to raise awareness of haemochromatosis and coincides with World Haemochromatosis Awareness Week.

OVERLOAD is in its 8th year and now has a new venue at the Empire Hotel Gallery, 19-23 Emu Bay Rd, Deloraine, Tasmania. If you are in the neighbourhood, please visit the exhibition. The exhibition runs 29 May 2021 – 30 June 2021.

The theme this year is ‘Blood runs Deep’.

If you would like to enter please contact Sheila Stevenson, curator sheila.stevenson@ha.org.au

FotoFeXPO 2021 – International Photo Expo

Inheritance

Haemochromatosis International is hosting an online exhibition of photography from members and supporters around the world to coincide with World Week.

The theme for this year’s FotoFeXPO was selected to communicate the impact of inheritance on general health and well-being. Photos which reflect or depict any aspect of inheritance or heritage including places, customs, objects or physical features and attributes are all welcome.

All entries should be emailed toinfo@haemochromatosis-international.org. The closing date for entries is May 20. We will start posting images to the online gallery on the HI website from May 1 with voting for the People’s Choice Award taking place during WHW from June 1 – 7.

We request your permission to allow Haemochromatosis International and its member organisations to use your photo. In future FotoFeXPOs we hope to gain sponsorship for this annual exhibition.

Contact Us

If you would like to discuss an idea for raising awareness or would like some help or advice about running an event or activity during the week, email admin@ha.org.au or call our INFO LINE 1300 019 028.