World Haemochromatosis Week will be observed from 3 – 9 June 2019.
We are joining with other members of Haemochromatosis International, the international alliance of haemochromatosis support groups, to support a worldwide, coordinated haemochromatosis awareness campaign in the first week of June each year.
Using the media, displays, and other activities, the week is an opportunity to focus attention on Haemochromatosis and the risk of inherited iron overload.
Community Service Announcement – 30 second audio MP3 clip
Listen to the audio:
Radio stations may play this audio clip (unedited) on air at any time. We would appreciate a brief email letting us know you have used the CSA to firstname.lastname@example.org.
Download the file: HaemochromatosisCSA_Audio
Download the text of the CSA: CSA Script 2018 – Haemochromatosis Australia
How can I help?
You can help raise awareness too. There are a lot of simple things you can do to help:
• Like and share our Facebook page and posts
• Follow and retweet us Twitter @HaemAus
• Putting up a poster on a notice board at work, your social club, gym or even set up a display using one of our free resource kits (if you have permission of course).
• Asking your local pharmacist or medical clinic to display one of our posters during the week.
• Taking copies of our booklet Haemochromatosis Your Questions Answered or our brochures to your local medical clinic or venesection clinic
• Organise an informal fund-raising morning or afternoon tea with family and friends in support of Haemochromatosis Australia. You could take the opportunity to tell everyone a little about the condition and how it has affected your life. You don’t have to be an expert.
• Write to your local paper or ring your local radio station and tell them about haemochromatosis.
• Join Haemochromatosis Australia or make a tax-deductible donation. We are a volunteer organisation reliant on membership subscriptions and donations to raise awareness and provide support to those diagnosed with the condition. For just $40 a year (pensioners $25) you can help us in our mission to ensure No Australian will suffer harm from haemochromatosis.
The key messages of the week are:
• Haemochromatosis is a common inherited iron overload disorder.
• You know too little iron can be bad for your health.
Did you know that too much iron can also be bad for you?
• Iron overload may lead to serious medical problems. The good news is that it is easily treated if detected early and is no barrier to a normal, healthy life.
• If you know someone in your family has haemochromatosis, or you have been feeling tired and aching for an extended period, talk to your GP about haemochromatosis
Resources and Information
You can also download and print a copy from the links below
Poster 1 – Are you pumping too much iron?
Poster 2 – Tired and aching joints
Poster 3 – Celtic ancestry
or you can email email@example.com or give us a call on 1300 019 028.
Booklets and Brochures
You can download copies here:
or you can email firstname.lastname@example.org or give us a call on 1300 019 028 if you would like us to send you bulk print copies.
You can access our videos on YouTube or contact us and we will post you a DVD if you would like to play the videos during an event or in a display.
You can view our short (2 minute) animated video explaining haemochromatosis on YouTube here.
You can also order a Haemochromatosis Awareness Week resource kit by emailing email@example.com or calling our INFO LINE 1300 019 028 during business hours. The kit will include
• Haemochromatosis Your Questions Answered booklets
• Haemochromatosis brochures
• Balloons and pens
To be confirmed.
To order resources email firstname.lastname@example.org
If you would like to discuss an idea for raising awareness or would like some help or advice about running an event or activity during the week, email email@example.com or call our INFO LINE 1300 019 028.