World Haemochromatosis Week

From Awareness to Action

June is Action Month

Haemochromatosis runs in families. This June, HA is helping more Australians take practical steps toward earlier diagnosis, better support and stronger understanding.

TALK
TO YOUR FAMILY

Speak
TO YOUR GP

Donate BLOOD
IF YOU CAN

Share the
Message

Help HA reach 2,000 Registry participants

The Registry collects self-reported, de-identified data to help researchers and clinicians better understand diagnosis, treatment and the lived experience of haemochromatosis. You can join if you are 18+ with a confirmed diagnosis.

Join the HA Lifeblood Team

Join the HA Lifeblood Team

Many people with haemochromatosis can donate blood or take part in therapeutic venesection through Lifeblood. Donate during June and your donation counts in HA’s team tally.

  • Join the HA Lifeblood Team
  • Donate blood or plasma during June
  • Tag Haemochromatosis Australia in your donation selfie

 

You are not alone

Many people felt confused before diagnosis

Haemochromatosis can be underdiagnosed, misdiagnosed or overdiagnosed. Fatigue and joint pain are often attributed to other causes. The right tests and trusted information matter.

If you need help understanding what this means for you or your family, contact HA.

HA Info Line

Share your story

Real stories help people feel less alone

During World Haemochromatosis Week and June Action Month, HA is sharing stories from people living with haemochromatosis. Your story could help someone recognise the signs, speak with their GP or feel less alone after diagnosis.

You can share a short written story, a photo or a short video (30–60 seconds, recorded vertically on your phone).

You might share…

  • How you were diagnosed
  • What you wish you had known earlier
  • What you told your family
  • What helped you manage the condition
  • What you’d say to someone newly diagnosed

Quick video tips

📱Record vertically on your phone

💡 Choose a quiet, well-lit place

Aim for 30–60 seconds

💬 One clear message is enough — it doesn’t need to be perfect

 

Spread the word

Help HA reach more Australians

Organisations & health services

Share HA’s social posts, link to this page, promote the Family Letter and encourage people with a confirmed diagnosis to join the Registry.

Download the partner share pack

MPs & community leaders

Earlier diagnosis of haemochromatosis should not depend on chance. Support better pathways for diagnosis, treatment and research by sharing HA’s campaign.

Download MP letter template

Share on social

Share HA’s campaign posts, use #WHW2026 and #beatoverload, or send this page to a family member who may need it.

Download shareable tiles

Forward the Family Letter

The single most effective action. Forward HA’s Family Letter to someone in your family who may need to speak with their GP.

Download the Family Letter

DIGITAL TOOLKIT

Social Media Resources
To download the images simply right click on the tiles and save them as images’, and copy the text for the tiles for your own social sharing!

Hero campaign tile

World Haemochromatosis Week runs from 1-7 June 2026.

This year, Haemochromatosis Australia is helping more Australians move from awareness to action.

Talk to your family. Speak to your GP. Use HA’s resources to help start the conversation.

Visit www.ha.org.au

#WHW2026 #beatoverload

Family Risk tile

Are you the first in your family to be diagnosed with haemochromatosis?

Haemochromatosis runs in families. If you have been diagnosed, close biological relatives may need to speak with their GP about whether testing is appropriate.

HA’s Family Letter can help start the conversation.

Visit www.ha.org.au

#WHW2026 #beatoverload

Family Letter / Practical Action Toolkit tile

If haemochromatosis is in your family, HA’s Family Letter can help you start the conversation.

The Family Letter is part of HA’s Practical Action Toolkit and includes information that can help families prepare for a GP conversation.

Download it at www.ha.org.au

#WHW2026 #beatoverload

Info Line Support tile

You are not alone.

If you or someone in your family is affected by haemochromatosis, Haemochromatosis Australia provides information, resources and support.

Call the HA Info Line on 1300 019 028 or visit www.ha.org.au

#WHW2026 #beatoverload

Registry CTA tile

Help Haemochromatosis Australia reach 2,000 Registry participants.

The Australian Haemochromatosis Registry helps improve understanding of diagnosis, treatment access, health outcomes and patient experience.

People aged 18 and over with a confirmed diagnosis of haemochromatosis can join.

Visit registry.ha.org.au

#WHW2026 #beatoverload

Take Action This June tile

This June, you can take action in the way that is right for you.

Donate blood if you can.
Share the message if you can’t.
Encourage one person to learn more.
Join the Registry if you are eligible.

World Haemochromatosis Week runs from 1-7 June.

Find out more at www.ha.org.au

#WHW2026 #beatoverload

Share the message / aligned partner tile

Please help share World Haemochromatosis Week.

Haemochromatosis is one of Australia’s most common genetic conditions, and it runs in families.

By sharing Haemochromatosis Australia’s campaign, you can help more people start a family conversation, speak with their GP and find trusted support.

Visit www.ha.org.au

#WHW2026 #beatoverload

Donate if you can / share if you can’t tile

There is more than one way to take action this June.

Donate blood if you can. Share the message if you can’t. Encourage one person to learn more about haemochromatosis and speak with their GP if it is in their family.

Visit www.ha.org.au

#WHW2026 #beatoverload

Share your story tile

Real stories help people feel less alone.

During World Haemochromatosis Week and June Action Month, Haemochromatosis Australia is sharing stories from people living with haemochromatosis.

Your story could help someone recognise the signs, talk to their family, speak with their GP or feel more supported after diagnosis.

Visit www.ha.org.au

#WHW2026 #beatoverload