What is Haemochromatosis?
Clinical guidelines and useful links, patient resources,
Haemochromatosis Australia is proud to announce the date and venue for the next biennial haemochromatosis conference. The conference will be held at the QIMR Berghofer Medical Research Institute, Herston, Brisbane on Saturday and Sunday 6 & 7 August 2016. The theme of the conference will be ‘the future of haemochromatosis: linking research and life’. The […]
April 27th, 2015
Haemochromatosis HealthPathway – Melbourne
Haemochromatosis Australia is pleased to announce that the first Victorian Haemochromatosis HealthPathway has now been released for Melbourne. This adds to a number of Haemochromatosis HealthPathways already published or under development in NSW and ACT. Congratulations to HealthPathways Melbourne. Haemochromatosis Australia is assisting and encouraging Medicare Locals in other areas to include haemochromatosis in their […]
April 1st, 2015
Patient Opinion – Be Heard
Haemochromatosis Australia website now provides a link to the website Patient Opinion. This service is independent of Haemochromatosis Australia and our website. The link is at https://haemochromatosis.org.au/patient-opinion/ How does Patient Opinion work? Members of the public can anonymously post a story (positive or negative) on the Patient Opinion website about a local health service, or about health […]
January 12th, 2015
Arthritis and Haemochromatosis
Arthritis is a very common condition in Australia, and a major cause of disability and chronic pain affecting people from all walks of life. Arthritis Australia provides a range of condition-specific information sheets to help people understand this troublesome condition. Their newest information sheet is ‘Haemochromatosis and Haemochromatotic Arthritis’. This simple and easy-to-understand information sheet provides information about the […]
January 5th, 2015
Therapeutic Venesection and the High Ferritin App
Need to know more about the therapeutic venesection program and the associated High Ferritin online App provided by the Australian Red Cross Blood service? This comprehensive document from the Blood Service provides the answers. Read all about it here
December 3rd, 2014
Senator calls for increased genetic screening for haemochromatosis
Senator Catryna Bilyk (Tasmania) presented a speech in the Senate calling for increased government support for genetic screening for haemochromatosis. Haemochromatosis Australia and our medical advisors recently met with Assistant Health Minister Fiona Nash to make that case. The Senator points out in her speech “why not make the subsidy for genetic testing of haemochromatosis […]
September 16th, 2014
Haemochromatosis Health Pathway Launched
GPs, and other health professionals, in the Hunter region of NSW now have easy access to up to date information to help them in diagnosing and treating haemochromatosis. Information about the genetic basis of the disease, screening of relatives, how to investigate an affected person, how to interpret the results of the investigations, how to […]
September 15th, 2014
Free Public Forum – Genetics – QIMR Berghofer Brisbane
When – Wednesday 24 September, 10:00am-12:00pm Where: QIMR Berghofer Central, 300 Herston Rd, Herston QIMR Berghofer Institute are holding a free public genetics forum at the Institue in Herston, Brisbane. One of the talks by Professor Greg Anderson is about haemochromatosis. Greg is head of the Iron Metabolism Group at the institute and President of […]
