What is Haemochromatosis?
Clinical guidelines and useful links, patient resources,
June 21st, 2016
Paul Cox Dies of Liver Cancer at 76
Paul Cox, the great Australian film director and prolific independent film-maker has lost his battle with liver cancer at the age of 76. Paul was diagnosed with liver cancer in 2009 and only a last-minute liver transplant saved his life. At that time he was diagnosed with haemochromatosis and advanced iron overload which had led […]
March 30th, 2016
Melbourne Haemochromatosis Research Study Recruiting
Would you like to help with a haemochromatosis research study? The HFE Fibrosis Study team, a Melbourne based research study team are recruiting volunteers to take part in a study to validate the use of non-invasive tests for liver fibrosis in people who have genetic haemochromatosis and high levels of serum ferritin. If you have […]
Haemochromatosis Australia is proud to announce the date and venue for the next biennial haemochromatosis conference. The conference will be held at the QIMR Berghofer Medical Research Institute, Herston, Brisbane on Saturday and Sunday 6 & 7 August 2016. The theme of the conference will be ‘the future of haemochromatosis: linking research and life’. The […]
April 27th, 2015
Haemochromatosis HealthPathway – Melbourne
Haemochromatosis Australia is pleased to announce that the first Victorian Haemochromatosis HealthPathway has now been released for Melbourne. This adds to a number of Haemochromatosis HealthPathways already published or under development in NSW and ACT. Congratulations to HealthPathways Melbourne. Haemochromatosis Australia is assisting and encouraging Medicare Locals in other areas to include haemochromatosis in their […]
April 1st, 2015
Patient Opinion – Be Heard
Haemochromatosis Australia website now provides a link to the website Patient Opinion. This service is independent of Haemochromatosis Australia and our website. The link is at https://haemochromatosis.org.au/patient-opinion/ How does Patient Opinion work? Members of the public can anonymously post a story (positive or negative) on the Patient Opinion website about a local health service, or about health […]
January 12th, 2015
Arthritis and Haemochromatosis
Arthritis is a very common condition in Australia, and a major cause of disability and chronic pain affecting people from all walks of life. Arthritis Australia provides a range of condition-specific information sheets to help people understand this troublesome condition. Their newest information sheet is ‘Haemochromatosis and Haemochromatotic Arthritis’. This simple and easy-to-understand information sheet provides information about the […]
January 5th, 2015
Therapeutic Venesection and the High Ferritin App
Need to know more about the therapeutic venesection program and the associated High Ferritin online App provided by the Australian Red Cross Blood service? This comprehensive document from the Blood Service provides the answers. Read all about it here
December 3rd, 2014
Senator calls for increased genetic screening for haemochromatosis
Senator Catryna Bilyk (Tasmania) presented a speech in the Senate calling for increased government support for genetic screening for haemochromatosis. Haemochromatosis Australia and our medical advisors recently met with Assistant Health Minister Fiona Nash to make that case. The Senator points out in her speech “why not make the subsidy for genetic testing of haemochromatosis […]
