INFO LINE 1300 019 028
You can call our INFO LINE for the cost of local call from any land line in Australia.
Calls from mobile phones may cost more depending on your phone network.
A short (2 minute) animated video explaining the basics of hereditary haemochromatosis.
A more in depth discussion of haemochromatosis and the experiences of people diagnosed with the condition (10 minutes)
To order printed copies of the following resources email firstname.lastname@example.org
Haemochromatosis Your Questions Answered
Download a PDF version of our booklet here.
This 28-page booklet explains haemochromatosis in simple terms.
Family letter – what they need to know about haemochromatosis
Since haemochromatosis is an inherited disorder, family members of someone diagnosed with haemochromatosis are at increased risk of also having the condition. It is important to alert these family members and tell them what they need to do about it.
Explaining haemochromatosis to others might seem a difficult task, especially if you have just been diagnosed yourself and are just learning what you need to know to manage the condition.
Haemochromatosis Australia with the assistance of our GP Liaison Officer Dr Katie Goot MBBS FACRRM has developed a one page letter suitable to email or post to relatives. It explains what they need to know in simple terms and is suitable for them to take to their own GP to discuss testing.
Download a PDF of the family letter here.
International Therapeutic Guidelines
Therapeutic recommendations in HFE hemochromatosis for p.Cys282Tyr (C282Y/C282Y) homozygous genotype
Therapeutic guidelines published in Heaptology International Journal March 2018
Haemochromatosis Information Sheets
IS1: Genetic Test results and haemochromatosis mutations. What genotype are you?
Explains the genetic basis of haemochromatosis and what each genetic test result type means.
IS2: Diet and Haemochromatosis
There is no specific diet for haemochromatosis. This information sheet provides information about diet and haemochromatosis.
We will add further information sheets from time to time. Please check nack later for more.
Other Fact Sheets
Haemochromatosis and Haemochromatotic Arthritis
Arthritis Australia have information sheet.
Life Insurance Products and Genetic Testing in Australia
Fact sheet from NSW Health Centre for Genetics Education www.genetics.edu.au. Updated 2 October 2018.
Visit the Contact Us page.