Quick links to resources available on this page:

Clinical Guidelines

GP Red Book
Guidelines for preventive activities in general practice 9th edition (Red Book)
Genetic counselling and screening – hereditary haemochromatosis

GESA – HAEMOCHROMATOSIS (Third edition) 2007
Clinical guidelines for the diagnosis and management of haemochromatosis.
Published by the Digestive Health Foundation (Gastroenterological Society of Australia).
Haemochromatosis (3rd edition 2007)

Australian Family Physician – RACGP
Article from Australian Family Physician, Volume 41, No 12, December 2012
Elevated serum ferritin – what should GPs know?

American Association for the Study of Liver Disease
 Clinical guidelines for the diagnosis and management of haemochromatosis published by the American Association for the Study of   Liver Disease.
Diagnosis and Management of Haemochromatosis: 2011 Practice Guidelines July 2011

European Association for the Study of the Liver
 EASL Clinical practice guidelines.
Issue 3 – April 2010
HFE Haemochromatosis.

Irish College of General Practitioners
Paper published by the Irish College of General Practitioners, Quality in Practice Committee. 2009.
Hereditary Haemochromatosis: Diagnosis and Management from a GP Perspective

Venesection Guidelines and Resources

Australian Red Cross Blood Service – Therapeutic venesection
Blood Service Therapeutic Venesection policy.

High Ferritin App: Blood Service Online referral system for therapeutic venesection
High ferritin App: ARCBS Therapeutic Venesection high ferritin referral system for treating doctors.

Illustrated Guide: Venesections for hereditary haemochromatosis
An illustrated guide to performing venesections for doctors and nurses, which includes Medicare Benefits Schedule information and an example venesection regime for patients with haemochromatosis, is available for download here.

Brochures,Information and Videos for Patients

Family letter – haemochromatosis
For many newly diagnosed patients, explaining haemochromatosis and the need for testing to family members can be a daunting prospect. Haemochromatosis Australia with the assistance of our GP Liaison Officer Dr Katie Goot MBBS FACRRM have developed a one page letter suitable for patients to email or post to their close relatives.Download a PDF of the family letter here.

Haemochromatosis (Haemochromatosis Australia)
Haemochromatosis brochure downloadBrochure published by Haemochromatosis Australia with brief information for patients about haemochromatosis and   contact details for Haemochromatosis Australia.
You can download a PDF version of the brochure here or order free hard copies of this brochure at publications@ha.org.au.

Haemochromatosis Your Questions Answered
Haemochromatosis Your Questions Answered booklet downloadBooklet published by Haemochromatosis Australia with comprehensive consumer focussed information for patients about haemochromatosis. Co-authors include Professor Martin Delatycki, Professor Lawrie Powell, Professor John Olynyk and Dr Barbara Bell (ARCBS). 28 pages A5.

You can download a PDF version of the booklet here or order free hard copies of this booklet at publications@ha.org.au.

Haemochromatosis Education Videos

These videos can be found on Haemochromatosis Australia YouTube channel page https://www.youtube.com/user/HaemochromatosisAust

Haemochromatosis – short animation (2 min 15 sec)

Haemochromatosis Explained (10 minutes)

Online Training

Diagnosis and Management of Haemochromatosis
Medical practitioners with access to the Australian College of Rural and Remote Meidine’s online educational system Rural and Remote Medical Education Online (RRMEO) can access this concise 90-minute educational module by ACRRM Fellow Dr Katie Goot.
Diagnosis and Management of Haemochromatosis

Centre for Disease Control and Prevention (USA)
Hemochromatosis: What every clinician and health care professional needs to know.
Online training module

 

Journal Articles

Australian Family Physician – RACGP
Elevated serum ferritin – what should GPs know?
Article from Australian Family Physician,
Volume 41, No 12, December 2012
Dr Katie Goot MBBS FACRRM

Australian Diabetes Educator
The Bronze Killer – Haemochromatosis and Diabetes

Article from Australian Diabetes Educators Association journal
Volume 17. Number 2, June 2014
Amit Lalwani and Jenny E Gunton M.B.B.S FRACP, PhD

Ferriscan

FerriScan and haemochromatosis
Ferriscan is an MRI-based method of measuring liver iron concentration. It provides an accurate, accessible and safe method of assessing the presence and severity of iron overload.  Ferriscan Fact sheet. (Resonance Health)

FerrisScan locations – find your nearest FerriScan location.

HealthPathways Community

A number of regions have or are currently considering developing a Hereditary Haemochromatosis HealthPathway.  The following have a live Hereditary Haemochromatosis HealthPathway:
• HealthPathways ACT and SNSW
• HealthPathways Western Victoria
• CentralCoast HealthPathways
• HealthPathways Hunter New England
• HealthPathways Melbourne
• HealthPathways Mid and North Coast
• HealthPathways Sydney
• HealthPathways Townsville
• Western Sydney HealthPathways
• HealthPathways Illawarra Shoalhaven
• HealthPathways Tasmania