New online CPD Haemochromatosis Learning Module
We are proud to announce that we have partnered with ThinkGP to produce a free online learning module accredited by RACGP and ACRRM for health professionals. The 5-hour self-paced Active Leaning Module is also available in 4 smaller individual modules. Available for GPs and allied health professionals on Think GP website here https://www.thinkgp.com.au/.
Quick links to all resources for health professionals available on this page:
- Clinical Guidelines
- Venesection Guidelines and Resources
- Brochures information and videos for patients
- IRON MATTERS podcasts
- Online Training modules for GPs and nurses
- Ferriscan information
- Health Pathways
See our full range of patient resources here. We are happy to post any of these patient resources to medical practices and venesection providers. Email firstname.lastname@example.org or call our INFO LINE 1300 019 028
RACGP – Clinical Guidelines
Genomics in General Practice
RACGP – GP Red Book
Guidelines for preventive activities in general practice 9th edition (Red Book)
Genetic counselling and screening – hereditary haemochromatosis
GESA – HAEMOCHROMATOSIS (Third edition) 2007
Clinical guidelines for the diagnosis and management of haemochromatosis.
Published by the Digestive Health Foundation (Gastroenterological Society of Australia).
Haemochromatosis (3rd edition 2007)
Australian Family Physician – RACGP
Article from Australian Family Physician, Volume 41, No 12, December 2012
Elevated serum ferritin – what should GPs know?
International Therapeutic Guidelines
Therapeutic guidelines published in Heaptology International Journal March 2018
Therapeutic recommendations in HFE hemochromatosis for p.Cys282Tyr (C282Y/C282Y) homozygous genotype
American Association for the Study of Liver Disease
Clinical guidelines for the diagnosis and management of haemochromatosis published by the American Association for the Study of Liver Disease.
Diagnosis and Management of Haemochromatosis: 2011 Practice Guidelines July 2011
European Association for the Study of the Liver
EASL Clinical practice guidelines.
Issue 3 – April 2010
Irish College of General Practitioners
Paper published by the Irish College of General Practitioners, Quality and Safety in Practice Committee. 2020.
Hereditary Haemochromatosis: Diagnosis and Management from a GP Perspective
The Bronze Killer – Haemochromatosis and Diabetes
Article from Australian Diabetes Educators Association journal
Volume 17. Number 2, June 2014
Amit Lalwani and Jenny E Gunton M.B.B.S FRACP, PhD
Venesection Guidelines and Resources
High Ferritin App: Australian Red Cross Lifeblood Online referral system for therapeutic venesection
High ferritin App: ARCBS Therapeutic Venesection high ferritin referral system for treating doctors.
Illustrated Guide: Venesections for hereditary haemochromatosis
An illustrated guide to performing venesections for doctors and nurses, which includes Medicare Benefits Schedule information and an example venesection regime for patients with haemochromatosis, is available for download here.
Brochures, Information and Videos for Patients
Family letter – haemochromatosis
For many newly diagnosed patients, explaining haemochromatosis and the need for testing to family members can be a daunting prospect. Haemochromatosis Australia with the assistance of our GP Liaison Officer Dr Katie Goot MBBS FACRRM have developed a one page letter suitable for patients to email or post to their close relatives.Download a PDF of the family letter here.
Haemochromatosis (Haemochromatosis Australia)
Brochure published by Haemochromatosis Australia with brief information for patients about haemochromatosis and contact details for Haemochromatosis Australia.
You can download a PDF version of the brochure here or order free hard copies of this brochure at email@example.com.
Haemochromatosis Your Questions Answered
Booklet published by Haemochromatosis Australia with comprehensive consumer focussed information for patients about haemochromatosis. Co-authors include Professor Martin Delatycki, Professor Lawrie Powell, Professor John Olynyk and Dr Barbara Bell (ARCBS). 28 pages A5.
Insurance and Genetic Testing
Life Insurance Products and Genetic Testing in Australia
Fact sheet from NSW Health Centre for Genetics Education www.genetics.edu.au. Updated 2 October 2018.
Haemochromatosis Education Videos
These videos can be found on Haemochromatosis Australia YouTube channel page https://www.youtube.com/user/HaemochromatosisAust
Haemochromatosis – short animation (2 min 15 sec)
Haemochromatosis Explained (10 minutes)
IRON MATTERS podcasts
Our podcast series for GPs and health professionals featuring clinicians and researchers exploring issues associated with haemochromatosis and iron overload.
Download and subscribe to IRON MATTTERS in your favourite podcast app or listen to the podcasts here
View videos of the podcasts on our IRON MATTERS YouTube channel.
Haemochromatosis: Preventing harm caused by iron overload with timely diagnosis and best practice management – free online CPD learning modules
Accredited for CPD by RACGP and ACRRM the modules sponsored by Haemochromatosis Australia are provided free to GPs and allied health professionals on their website https://www.thinkgp.com.au/ .
Diagnosis and Management of Haemochromatosis
Medical practitioners with access to the Australian College of Rural and Remote Medicine’s online educational system Rural and Remote Medical Education Online (RRMEO) can access this concise 90-minute educational module by ACRRM Fellow Dr Katie Goot.
Diagnosis and Management of Haemochromatosis
General Practice Supervisors Australia (GPSA) – Teaching Plan
This resource helps GP registrars develop an approach to the patient with possible iron overload, and encourages an understanding of the role for genetic testing. Included are a number of excellent clinical resources, and links to Haemochromatosis Australia. Find the teaching plan under ‘Diagnoses’ on their Education Resources page
Hereditary Haemochromatosis Teaching Plan
Haemochromatosis for Nurses
Online learning module from Australian Primary Health Care Nurses Association (APNA).
Haemochromatosis for Nurses
FerriScan and haemochromatosis
Ferriscan is an MRI-based method of measuring liver iron concentration. It provides an accurate, accessible and safe method of assessing the presence and severity of iron overload. Ferriscan Fact sheet. (Resonance Health)
FerrisScan locations – find your nearest FerriScan location.
A number of regions have or are currently considering developing a Hereditary Haemochromatosis HealthPathway. The following have a live Hereditary Haemochromatosis HealthPathway:
• HealthPathways ACT and SNSW
• Brisbane North HealthPathways
• CentralCoast HealthPathways
• HealthPathways Hunter New England
• HealthPathways Illawarra Shoalhaven
• Mackay HealthPathways
• HealthPathways Melbourne
• HealthPathways Mid and North Coast
• Murray HealthPathways
• Nepean Blue Mountains PHN
• Health Pathways Sunshine Coast and Gympie
• HealthPathways Sydney
• HealthPathways South Western Sydney
• HealthPathways Tasmania
• HealthPathways Townsville
• Western Sydney HealthPathways
• HealthPathways Western Victoria
• HealthPathways WA
• HealthPathways Wide Bay