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Resources for GPs and Health Professionals

Quick links to resources available on this page:

Clinical Guidelines

RACGP – Clinical Guidelines
Genomics in General Practice
Hereditary haemochromatosis

RACGP – GP Red Book
Guidelines for preventive activities in general practice 9th edition (Red Book)
Genetic counselling and screening – hereditary haemochromatosis

GESA – HAEMOCHROMATOSIS (Third edition) 2007
Clinical guidelines for the diagnosis and management of haemochromatosis.
Published by the Digestive Health Foundation (Gastroenterological Society of Australia).
Haemochromatosis (3rd edition 2007)

Australian Family Physician – RACGP
Article from Australian Family Physician, Volume 41, No 12, December 2012
Elevated serum ferritin – what should GPs know?

International Therapeutic Guidelines
Therapeutic guidelines published in Heaptology International Journal March 2018
Therapeutic recommendations in HFE hemochromatosis for p.Cys282Tyr (C282Y/C282Y) homozygous genotype

American Association for the Study of Liver Disease
 Clinical guidelines for the diagnosis and management of haemochromatosis published by the American Association for the Study of   Liver Disease.
Diagnosis and Management of Haemochromatosis: 2011 Practice Guidelines July 2011

European Association for the Study of the Liver
 EASL Clinical practice guidelines.
Issue 3 – April 2010
HFE Haemochromatosis.

Irish College of General Practitioners
Paper published by the Irish College of General Practitioners, Quality in Practice Committee. 2009.
Hereditary Haemochromatosis: Diagnosis and Management from a GP Perspective

Venesection Guidelines and Resources

Australian Red Cross Blood Service – Therapeutic venesection
Blood Service Therapeutic Venesection policy.

High Ferritin App: Blood Service Online referral system for therapeutic venesection
High ferritin App: ARCBS Therapeutic Venesection high ferritin referral system for treating doctors.

Illustrated Guide: Venesections for hereditary haemochromatosis
An illustrated guide to performing venesections for doctors and nurses, which includes Medicare Benefits Schedule information and an example venesection regime for patients with haemochromatosis, is available for download here.

Brochures,Information and Videos for Patients

Family letter – haemochromatosis
For many newly diagnosed patients, explaining haemochromatosis and the need for testing to family members can be a daunting prospect. Haemochromatosis Australia with the assistance of our GP Liaison Officer Dr Katie Goot MBBS FACRRM have developed a one page letter suitable for patients to email or post to their close relatives.Download a PDF of the family letter here.

Haemochromatosis (Haemochromatosis Australia)
Haemochromatosis brochure downloadBrochure published by Haemochromatosis Australia with brief information for patients about haemochromatosis and   contact details for Haemochromatosis Australia.
You can download a PDF version of the brochure here or order free hard copies of this brochure at publications@ha.org.au.

Haemochromatosis Your Questions Answered
Booklet published by Haemochromatosis Australia with comprehensive consumer focussed information for patients about haemochromatosis. Co-authors include Professor Martin Delatycki, Professor Lawrie Powell, Professor John Olynyk and Dr Barbara Bell (ARCBS). 28 pages A5.

You can download a PDF version of the booklet here or order free hard copies of this booklet at publications@ha.org.au.

Insurance and Genetic Testing
Life Insurance Products and Genetic Testing in Australia
Fact sheet from NSW Health Centre for Genetics Education www.genetics.edu.au. Updated 2 October 2018.

Haemochromatosis Education Videos

These videos can be found on Haemochromatosis Australia YouTube channel page https://www.youtube.com/user/HaemochromatosisAust

Haemochromatosis – short animation (2 min 15 sec)

Haemochromatosis Explained (10 minutes)

Online Training

Diagnosis and Management of Haemochromatosis
Medical practitioners with access to the Australian College of Rural and Remote Meidine’s online educational system Rural and Remote Medical Education Online (RRMEO) can access this concise 90-minute educational module by ACRRM Fellow Dr Katie Goot.
Diagnosis and Management of Haemochromatosis

General Practice Supervisors Australia (GPSA) – Teaching Plan
This resource helps GP registrars develop an approach to the patient with possible iron overload, and encourages an understanding of the role for genetic testing. Included are a number of excellent clinical resources, and links to Haemochromatosis Australia. Find the teaching plan under ‘Diagnoses’ on their Education Resources page
Hereditary Haemochromatosis Teaching Plan

Haemochromatosis for Nurses
Online learning module from Australian Primary Health Care Nurses Association (APNA).
Haemochromatosis for Nurses

Centre for Disease Control and Prevention (USA)
Hemochromatosis: What every clinician and health care professional needs to know.
Online training module

Journal Articles

Australian Family Physician – RACGP
Elevated serum ferritin – what should GPs know?
Article from Australian Family Physician,
Volume 41, No 12, December 2012
Dr Katie Goot MBBS FACRRM

Australian Doctor
Iron Overload Syndrome
How to Treat series 9 November 2018
This article and quiz were written for Australia Doctor. To read the original and take the RACGP and ACRRM accredited quiz click here.

Australian Diabetes Educator
The Bronze Killer – Haemochromatosis and Diabetes
Article from Australian Diabetes Educators Association journal
Volume 17. Number 2, June 2014
Amit Lalwani and Jenny E Gunton M.B.B.S FRACP, PhD

Ferriscan

FerriScan and haemochromatosis
Ferriscan is an MRI-based method of measuring liver iron concentration. It provides an accurate, accessible and safe method of assessing the presence and severity of iron overload.  Ferriscan Fact sheet. (Resonance Health)

FerrisScan locations – find your nearest FerriScan location.

HealthPathways Community

A number of regions have or are currently considering developing a Hereditary Haemochromatosis HealthPathway.  The following have a live Hereditary Haemochromatosis HealthPathway:
• HealthPathways ACT and SNSW
• Brisbane North HealthPathways
• CentralCoast HealthPathways
• HealthPathways Hunter New England
• HealthPathways Illawarra Shoalhaven
• Mackay HealthPathways
• HealthPathways Melbourne
• HealthPathways Mid and North Coast
• Health Pathways Sunshine Coast and Gympie
• HealthPathways Sydney
• HealthPathways South Western Sydney
• HealthPathways Tasmania
• HealthPathways Townsville
• Western Sydney HealthPathways
• HealthPathways Western Victoria
• HealthPathways WA
• HealthPathways Wide Bay