New Think GP online CPD Haemochromatosis Learning Module

We are proud to announce that we have partnered with ThinkGP to produce a free online learning module accredited by RACGP and ACRRM for health professionals. The 5-hour self-paced Active Leaning Module is also available in 4 smaller individual modules. Available for GPs and allied health professionals on Think GP website here https://www.thinkgp.com.au/.


Our podcast series for GPs and health professionals featuring clinicians and researchers exploring issues associated with haemochromatosis and iron overload.

Download and listen to IRON MATTTERS podcasts in your favourite podcast app or listen to the podcasts here

View videos of the podcasts on our IRON MATTERS YouTube channel.

Quick links to other resources for health professionals available on this page:

See our full range of patient resources here. We are happy to post any of these patient resources to medical practices and venesection providers. Email publications@ha.org.au or call our INFO LINE 1300 019 028

Brochures, Information and Videos for Patients

Family letter – haemochromatosis
For many newly diagnosed patients, explaining haemochromatosis and the need for testing to family members can be a daunting prospect. Haemochromatosis Australia with the assistance of our GP Liaison Officer Dr Katie Goot MBBS FACRRM have developed a one page letter suitable for patients to email or post to their close relatives.Download a PDF of the family letter here.

Haemochromatosis brochure download

Haemochromatosis (Haemochromatosis Australia)
Brochure published by Haemochromatosis Australia with brief information for patients about haemochromatosis and   contact details for Haemochromatosis Australia.
You can download a PDF version of the brochure here or order free hard copies of this brochure at publications@ha.org.au.

Haemochromatosis Your Questions Answered booklet download
Booklet – 28pp

Haemochromatosis Your Questions Answered
Booklet published by Haemochromatosis Australia with comprehensive consumer focussed information for patients about haemochromatosis. Co-authors include Professor Martin Delatycki, Professor Lawrie Powell, Professor John Olynyk and Dr Barbara Bell (ARCBS). 28 pages A5.
You can download a PDF version of the booklet here or order free hard copies of this booklet at publications@ha.org.au.

Insurance and Genetic Testing
Life Insurance Products and Genetic Testing in Australia
Fact sheet from NSW Health Centre for Genetics Education www.genetics.edu.au. Updated 2 October 2018.

Haemochromatosis Education Videos

These videos can be found on Haemochromatosis Australia YouTube channel page https://www.youtube.com/user/HaemochromatosisAust

Haemochromatosis – short animation (2 min 15 sec)

Haemochromatosis Explained (10 minutes)

Clinical Guidelines

RACGP – GP Red Book
Guidelines for preventive activities in general practice 9th edition (Red Book)
Genetic counselling and screening – hereditary haemochromatosis

GESA – HAEMOCHROMATOSIS (Third edition) 2011
Clinical guidelines for the diagnosis and management of haemochromatosis.
Published by the Digestive Health Foundation (Gastroenterological Society of Australia).
Haemochromatosis (3rd edition 2011)

Elevated serum ferritin – what should GPs know?
Australian Family Physician – RACGP
Article from Australian Family Physician, Volume 41, No 12, December 2012
Elevated serum ferritin – what should GPs know?

International Therapeutic Guidelines
Therapeutic guidelines published in Heaptology International Journal March 2018
Therapeutic recommendations in HFE hemochromatosis for p.Cys282Tyr (C282Y/C282Y) homozygous genotype

The Bronze Killer – Haemochromatosis and Diabetes
Article from Australian Diabetes Educators Association journal
Volume 17. Number 2, June 2014
Amit Lalwani and Jenny E Gunton M.B.B.S FRACP, PhD

Venesection Guidelines and Resources

Australian Red Cross Lifeblood – Therapeutic venesection
Lifeblood Therapeutic Venesection policy.

High Ferritin App: Australian Red Cross Lifeblood Online referral system for therapeutic venesection
High ferritin App: ARCBS Therapeutic Venesection high ferritin referral system for treating doctors.

Illustrated Guide: Venesections for hereditary haemochromatosis
An illustrated guide to performing venesections for doctors and nurses, which includes Medicare Benefits Schedule information and an example venesection regime for patients with haemochromatosis, is available for download here.

Online Training

Haemochromatosis: Preventing harm caused by iron overload with timely diagnosis and best practice management – free online CPD learning modules
Accredited for CPD by RACGP and ACRRM the modules sponsored by Haemochromatosis Australia are provided free to GPs and allied health professionals on their website https://www.thinkgp.com.au/ .

Diagnosis and Management of Haemochromatosis
Medical practitioners with access to the Australian College of Rural and Remote Medicine’s online educational system Rural and Remote Medical Education Online (RRMEO) can access this concise 90-minute educational module by ACRRM Fellow Dr Katie Goot.
Diagnosis and Management of Haemochromatosis

General Practice Supervisors Australia (GPSA) – Teaching Plan
This resource helps GP registrars develop an approach to the patient with possible iron overload, and encourages an understanding of the role for genetic testing. Included are a number of excellent clinical resources, and links to Haemochromatosis Australia. Find the teaching plan under ‘Diagnoses’ on their Education Resources page
Hereditary Haemochromatosis Teaching Plan

Haemochromatosis for Nurses
Online learning module from Australian Primary Health Care Nurses Association (APNA).
Haemochromatosis for Nurses


FerriScan and haemochromatosis
Ferriscan is an MRI-based method of measuring liver iron concentration. It provides an accurate, accessible and safe method of assessing the presence and severity of iron overload.  Ferriscan Fact sheet. (Resonance Health)

FerrisScan locations – find your nearest FerriScan location.

HealthPathways Community

A number of regions have or are currently considering developing a Hereditary Haemochromatosis HealthPathway.  The following have a live Hereditary Haemochromatosis HealthPathway:
• HealthPathways ACT and SNSW
• Brisbane North HealthPathways
• CentralCoast HealthPathways
• HealthPathways Hunter New England
• HealthPathways Illawarra Shoalhaven
• Mackay HealthPathways
• HealthPathways Melbourne
• HealthPathways Mid and North Coast
• Murray HealthPathways
• Nepean Blue Mountains PHN
• Health Pathways Sunshine Coast and Gympie
• HealthPathways Sydney
• HealthPathways South Western Sydney
• HealthPathways Tasmania
• HealthPathways Townsville
• Western Sydney HealthPathways
• HealthPathways Western Victoria
• HealthPathways WA
• HealthPathways Wide Bay