Resources
PUBLICATIONS
PUBLICATIONS
Haemochromatosis Your Questions Answered
This 28-page booklet explains haemochromatosis in simple terms.
Haemochromatosis’ brochure
Family letter – what they need to know about haemochromatosis
Explaining haemochromatosis to others might seem a difficult task, especially if you have just been diagnosed yourself and are just learning what you need to know to manage the condition.
Haemochromatosis Australia with the assistance of our GP Liaison Officer Dr Katie Goot MBBS FACRRM has developed a one page letter suitable to email or post to relatives. It explains what they need to know in simple terms and is suitable for them to take to their own GP to discuss testing.
International Therapeutic Guidelines
Therapeutic guidelines published in Hepatology International Journal March 2018
Therapeutic recommendations in HFE hemochromatosis for p.Cys282Tyr (C282Y/C282Y) homozygous genotype
FACT SHEETS
Published by Haemochromatosis Australia
Genetic Test results and haemochromatosis mutations. What genotype are you?
Explains the genetic basis of haemochromatosis and what each genetic test result type means.
Diet and Haemochromatosis
There is no specific diet for haemochromatosis. This information sheet provides information about diet and haemochromatosis.
We will add further information sheets from time to time. Please check back later for more.
Tips for a successful venesection.
To order printed copies of the above resources email publications@ha.org.au
Other Fact Sheets
Haemochromatosis and Haemochromatotic Arthritis
Arthritis Australia have information sheet.
Life Insurance Products and Genetic Testing in Australia
Fact sheet from NSW Health Centre for Genetics Education
VIDEOS
Haemochromatosis in Two Minutes
Your Stories
James and Anne
Tommy
Dan
Watch lots more videos of people sharing their stories plus experts’ videos on haemochromatosis on our YouTube channel.
IRON MATTERS PODCASTS
IRON MATTERS PODCASTS
The IRON MATTERS podcast series features experts discussing haemochromatosis for health professionals. Many people living with haemochromatosis also find them interesting and useful.
You can subscribe to IRON MATTERS on your favourite podcast app or listen to them on our IRON MATTERS Podcast page.
MY IRON MANAGER APP
About this App
An app to help you manage your treatment for haemochromatosis providing a directory of places where you can have your blood taken (searchable by postcode), an online tool for recording (& downloading) your blood test results and venesection history, and a calendar for managing your appointments.
All data entered to the App is stored locally on the device, not uploaded to the internet. The App is safe, secure and easy to use.
Use the app to:
- Set treatment goals (targets for Serum Ferritin & Transferrin Saturation )
- Record blood test results
- Record treatment history (dates you had blood taken)
- View your progress against goals
- Export your results for your GP or specialist (optional)
- Record appointments and receive reminders
- Track which arm you last used for giving blood
- Find where you can have blood taken (browse the map or search by location)
- Find tips for preparing to have blood taken
- Find out more about haemochromatosis
Download the App
Free app available in both the Apple Store and Google Play.
https://play.google.com/store/apps/details?id=com.arcbs.myironmanager
https://apps.apple.com/au/app/my-iron-manager/id1476487578
