The Times They Are A-changing
The Future Of The Haemochromatosis Society Of Australia
Why change?
Haemochromatosis is a condition affecting at least one in every 300 people in Australia.
The Haemochromatosis Society of Australia is a support organisation that has helped countless people understand and manage the condition since its inception in 1991.
The Society has always relied on a few dedicate committee members to carry on but we can’t rely on the same people year after year.
They have asked for help – let’s do that!
We now need to look to the future and make sure the Society can continue to expand its valuable work to support current and future members.
Who we are – the National Steering Group
We are a group of Society members who answered the call for help from the original committee.
We want to make sure the Society continues to do its great work and enhance the knowledge and management of hameochromatosis in Australia.
You can be part of this change too – email or ring a local state contact to offer your ideas or support.
See the list of contacts below.
What we’ve done so far:
Society President, Margaret Rankin sent out a call for action in late 2009 asking for help to continue the Society. Several members said they would like to help.
In December 2009, 12 people met at Margaret’s house in Brisbane to work out what needs to be done. At that meeting, we reaffirmed the principles and aims of the Society, set out a plan for change and agreed to move forward to continue the work.
We established a National Steering Group to develop and implement changes to ensure the Society’s future.
View a full report of the first meeting here.
Where to from here?
The current Society committee will continue its invaluable work until the next Annual General Meeting in August 2010.
The National Steering Group are investigating the best way to set up a modern, committed and effective organisation that will continue the great work of Margaret Rankin, current and past committee members and the dedicated volunteers who have made such a difference to the lives of people with haemochromatosis and their families over the last twenty years..
We are researching options for a national structure, legal aspects, communication and technology options for a future Society and aim to have that in place by August 2010.
The National Steering Group will meet again by phone hook-up in February 2010.
We continue to work together to build our future. You can join us by contacting a local contact.
How you can help
You don’t need to do much to help hameochromatosis people and their families.
You can join the Society here.
You can learn more about the condition here.
You can talk to a member of the National Steering Group and suggest ideas or offer support.
You can volunteer to help out with your own skills and knowledge – you don’t need to join a committee to help.
A few hours of administrative or professional help would make so much difference.
| Name | Phone |
|---|---|
| Queensland | |
| Marg Rankin | 07 33450581 |
| Brian Smith | 07 33976724 |
| Marea Petty | 07 38022181 |
| James Stephenson | 0411 627477 |
| Bill McNeill | 07 33682749 |
| Val Bell | 07 3796722 |
| QLD (Sunshine Coast) | |
| Linda Rule | 07 54411035 |
| Tony Moorhead | 07 54388267 |
| New South Wales | |
| Karin Calford | 02 49597674 |
| Victoria | |
| Traicee Evison-Griffith | 03 55683163 |
| Tasmania | |
| Ben Marris | 03 62674787 |
| South Australia | |
| Desma Wieringa | 08 82982026 |