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 1 
 on: Today at 03:43:03 pm 
Started by Chris1980 - Last post by steveF
Chris, congratulations!  You are closing on the teritory I am in.  Ferritin is floating at 120 - 180 and liver enzymes looking OK too (they were worrying me).  I am fighting with Transferin Saturation percentage at 74 on 2 monthly venesection.  I have asked the specialist if I should drop to maybe monthly or 6 weekly until we exaust all the excess iron.  I am waiting for his answer.

SteveF

 2 
 on: Thu 09 September, 2010, 05:31:33 pm 
Started by myforu1288 - Last post by FeralFerritin
Shanti
I wasn't trying to suggest you cut greens, everything I've read & been told is that you must continue to eat greens due to their health benefits, besides most leafy & broccoli types also have a compound that means a lot of the iron in them isn't actually absorbed.

Also just came across this by accident
Quote
Too much iron activates platelets, increases the cellular trigger for blood clotting and decreases levels of nitric oxide, the molecule that causes blood vessels to relax. When the amount of iron is decreased, the levels of nitric oxide and protective (HDL) cholesterol increase and the level of damaging cholesterol decreases.
http://www.cancer.dartmouth.edu/iron/dm.shtml


 3 
 on: Thu 09 September, 2010, 11:14:06 am 
Started by Chris1980 - Last post by Chris1980
Well I got my results last night, Ferritin is down to around 250 which is within normal range. Still going to have the venesection until it is down below 100 and then take things from there.

My high liver enzymes are also coming down and are almost back to normal! Time for a beer I think.....

 4 
 on: Mon 06 September, 2010, 05:58:59 pm 
Started by myforu1288 - Last post by Shanti
Though I'm guessing (since I don't have this problem, in fact nurses love my veins! Smiley) would being "hot" help with your veins & blood flow? I suspect it would as your body naturally pumps more blood to your arms & legs to cool down and thus also "inflate" veins.

The problem might be being made worse by us going into air conditioned rooms after being outside in hot weather (or being rapped up in a thick coat?), our body would then sense the cooler change in temperature and probably reduce blood flow to all limbs in order to maintain core temperature.

We all know about good hydration, I also believe Omega 3's (eg. fish oil) are useful too as they are natural blood thinners that would therefore help the blood flow, though you need to take them for at least a month before they will be effective, it's no good just popping a couple before your venesection.

I know body builders take nitric oxide supplements as it is a vasodilator, it makes their veins bigger and flows more blood to muscles (though frequent (daily) use reduces it's effectiveness), but that would not be a problem for venesections as you'd just take it infrequently prior. It's easily available at most supplement stores like GNC, though many brands may have a lot of extra ingredients that we don't need so probably go for a basic one. Wether this would help problems with venesections or not I don't actually know but it may be worth a try if desperate. As normal, consult your doctor if you have any other health issues.

Also high levels of Vitamin K will increase blood coagulation and possibly reduce flows. Vit K is found in leafy greens, broccoli, cabbage, saturated fats (incl. butter), liver & kidney (bovine only?), there's even some in avo's & kiwifruit. Some live bacteria in some cultured foods like yogurt & some cheese (soft?) can synthesize vit K in your gut.

Note: One study found that high levels of iron (not sure what they mean by that) reduced platelets thus making blood thinner (the same thing fish oil does), though other studies have found the opposite, I believe.

This is all great info.
We did the heat thing on the second time round.. no air-con and a hot pack, and I was rugged up far more than was decent in the Queensland heat!  I also take fish oil regularly. However the nitric oxide idea is definitely worth looking into. The diet thing is tricky.. I do eat a lot of green and leafies, but I'm not keen on letting go of that.
I'm booked into a pathology lab this Thursday .. wish me luck!

 5 
 on: Mon 06 September, 2010, 10:26:15 am 
Started by myforu1288 - Last post by FeralFerritin
Though I'm guessing (since I don't have this problem, in fact nurses love my veins! Smiley) would being "hot" help with your veins & blood flow? I suspect it would as your body naturally pumps more blood to your arms & legs to cool down and thus also "inflate" veins.

The problem might be being made worse by us going into air conditioned rooms after being outside in hot weather (or being rapped up in a thick coat?), our body would then sense the cooler change in temperature and probably reduce blood flow to all limbs in order to maintain core temperature.

We all know about good hydration, I also believe Omega 3's (eg. fish oil) are useful too as they are natural blood thinners that would therefore help the blood flow, though you need to take them for at least a month before they will be effective, it's no good just popping a couple before your venesection.

I know body builders take nitric oxide supplements as it is a vasodilator, it makes their veins bigger and flows more blood to muscles (though frequent (daily) use reduces it's effectiveness), but that would not be a problem for venesections as you'd just take it infrequently prior. It's easily available at most supplement stores like GNC, though many brands may have a lot of extra ingredients that we don't need so probably go for a basic one. Wether this would help problems with venesections or not I don't actually know but it may be worth a try if desperate. As normal, consult your doctor if you have any other health issues.

Also high levels of Vitamin K will increase blood coagulation and possibly reduce flows. Vit K is found in leafy greens, broccoli, cabbage, saturated fats (incl. butter), liver & kidney (bovine only?), there's even some in avo's & kiwifruit. Some live bacteria in some cultured foods like yogurt & some cheese (soft?) can synthesize vit K in your gut.

Note: One study found that high levels of iron (not sure what they mean by that) reduced platelets thus making blood thinner (the same thing fish oil does), though other studies have found the opposite, I believe.

 6 
 on: Sun 05 September, 2010, 11:42:25 am 
Started by myforu1288 - Last post by Shanti

The last one produced no blood - both arms were like pin cushions, and I had to return the following week, which was successful.

/quote]

Yes, it is frustrating, isn't it. I've had 2 'no-go' weeks, and my situation seems very much like yours. It's not a good look, wandering around with madly punctured inner arms  Sad

Do you just have regular sections, or do you wait for the levels to rise?  I would really like to just go say 4 times a year as a regular routine rather than wait.  The doctor thinks I'm just imagining it, but I am sure I feel worse when there is even a small amount of overload.

 7 
 on: Sun 05 September, 2010, 11:22:22 am 
Started by FeralFerritin - Last post by Jayse
My specialist told me it's a symptom, and yes, i too have suffered it a little. Heart-burn (gastric reflux) is another symptom you dont read about, i get it terribly.

 8 
 on: Sun 05 September, 2010, 11:12:13 am 
Started by myforu1288 - Last post by droflack
Hi Shanti
droflack, has anyone indicated why you are developing a vein problem? I have only really had one spot that works, and it is now a mass of scar tissue. It is almost impossible to get blood from any other place.

I was a regular blood donor in my twenties, which was probably good for my iron levels, but after venesections as well has resulted in scar tissue in what was the best vein.  When I began venesections, I also had at that time undiagnosed heart problems, which may have contributed to the extremely slow blood flow when venesecting - the blood would not flow, and would clot at the needle in my arm.  To resolve this, a 'butterfly' needle was used - a much smaller gauge needle with which they could also syringe the blood out, rather than waiting for it to flow.  This worked well.  My blood (for whatever reason) now flows more freely, and it is a lighter color as well. However, i was advised by another health professional that syringing out the blood can have the affect of collapsing the veins and is generally not best practice.   I don't think this has had a permanent affect on my veins though.  I am unlucky in that I have been naturally endowed with small veins, which seem to become finer with age, but I dont think I have am developing a 'vein problem' as such.  Just the luck of the draw - will see how the next venesection goes in a couple of weeks.  The last one produced no blood - both arms were like pin cushions, and I had to return the following week, which was successful.


 9 
 on: Sun 05 September, 2010, 09:06:26 am 
Started by myforu1288 - Last post by Shanti
Mad cow! Me too, I was in the UK for about 20yrs.

I was under the impression the Red Cross would still draw your blood, for medical reasons even if you were in UK, or in some other risk category, but they would just bin it. The reason they will take it is so that people do not lie about it. I read this somewhere a couple of weeks ago . . . though can't find it now  Huh

They did take mine once, on the day I was rejected! But I wouldn't feel right about tying up their resources without them being able to use it.  And I have auto-immune diseases, so I think my blood is a bit of a dud  Undecided

 10 
 on: Sat 04 September, 2010, 05:14:37 pm 
Started by FeralFerritin - Last post by FeralFerritin
Came across this posted on another forum (thanks to GuitarMan)

It's a comprehensive table showing normal reference levels for all your blood work etc

http://pathcuric1.swmed.edu/PathDemo/nrrt.htm


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