INFO LINE 1300 019 028
You can call our INFO LINE for the cost of local call from any land line in Australia.
Calls from mobile phones may cost more depending on your phone network.
A Practical Guide to Haemochromatosis
When you join Haemochromatosis Australia you will receive a copy of ‘A Practical Guide to Haemochromatosis’, full of practical information for those living with the disorder.
You can order additional copies for $15 from our INFO LINE 1300 019 028 (8.30 am to 5.30 pm Monday – Friday).
To order printed copies of the following resources email firstname.lastname@example.org
Haemochromatosis Your Questions Answered
Download a PDF version of our booklet here.
This 28-page booklet explains haemochromatosis in simple terms.
Family letter – what they need to know about haemochromatosis
Since haemochromatosis is an inherited disorder, family members of someone diagnosed with haemochromatosis are at increased risk of also having the condition. It is important to alert these family members and tell them what they need to do about it.
Explaining haemochromatosis to others might seem a difficult task, especially if you have just been diagnosed yourself and are just learning what you need to know to manage the condition.
Haemochromatosis Australia with the assistance of our GP Liaison Officer Dr Katie Goot MBBS FACRRM has developed a one page letter suitable to email or post to relatives. It explains what they need to know in simple terms and is suitable for them to take to their own GP to discuss testing.
Download a PDF of the family letter here.
Haemochromatosis Information Sheets
IS1: Genetic Test results and haemochromatosis mutations. What genotype are you?
Explains the genetic basis of haemochromatosis and what each genetic test result type means.
IS2: Diet and Haemochromatosis
There is no specific diet for haemochromatosis. This information sheet provides information about diet and haemochromatosis.
We will add further information sheets from time to time. Please check nack later for more.
Other Fact Sheets
Genetic testing for haemochromatosis – will it affect your insurance?
The Financial Services Council have issued a consumer fact sheet on genetic testing for haemochromatosis to provide guidance and clarity for consumers and medical professionals about the impact of genetic testing for the disease on life insurance applications.
Life Insurance Products and Genetic Testing in Australia
NSW Health, Centre for Genetics Education
Publications and Resources, Genetics Fact Sheets website page.
Haemochromatosis and Haemochromatotic Arthritis
Arthritis Australia have information sheet.
Visit the Contact Us page.