Our annual Haemochromatosis Awareness Week will be observed from 8 – 14 August 2016.

The week is an opportunity to focus attention on haemochromatosis and the risk of inherited iron overload through the media, displays and other activities.

Media Enquiries

Backgrounder and contacts for interviews here.

Senator hits speed bump.

How can I help?

You can help raise awareness too. There are a lot of simple things you can do to help:

• Putting up a poster on a notice board at work, your social club, gym or even set up a display using one of our free resource kits (if you have permission of course)

• Asking your local pharmacist or medical clinic to display one of our posters during the week.

• Taking copies of our booklet Haemochromatosis Your Questions Answered or our brochures to your local medical clinic or venesection clinic

• Organise an informal fund-raising morning or afternoon tea with family and friends in support of Haemochromatosis Australia. You could take the opportunity to tell everyone a little about the condition and how it has affected your life. You don’t have to be an expert. Here are some tips on how to organise the event.

• Write to your local paper or ring your local radio station and tell them about haemochromatosis.

• Join Haemochromatosis Australia or make a tax-deductible donation.. We are a volunteer organisation reliant on membership subscriptions and donations to raise awareness and provide support to those diagnosed with the condition. For just $40 a year (pensioners $25) you can help us in our mission to ensure No Australian will suffer harm from haemochromatosis.

•  Like and share our Facebook page and posts

•  Follow and retweet us Twttier @HaemAust

Pharmacies

In the lead-up to Haemochromatosis Awareness Week, the Pharmacy Guild is helping us promote the week through their Facebook page and website. Pharmacies are a trusted source of information, and can be a key front-line in raising awareness of inherited iron overload.

The Guild is encouraging pharmacists and pharmacy assistants to learn a little bit more about haemochromatosis and help inform their customers.   Iron deficiency is a much more common problem than iron overload, and we all know that iron deficiency causes health problems.  However, fewer people realise that for some, too much iron can be a problem. Haemochromatosis – also known as inherited iron overload disorder – can be easily treated, as long as it is detected before damage occurs.

Pharmacies can also set up haemochromatosis information displays for the week. We have plenty of free resources to help – these are available from publications@ha.org.au .

Haemochromatosis Awareness Week and pharmacies will help all Australians to understand a little bit more about this common genetic disorder.

Read the haemochromatosis information on the Pharmacy Guild website.

Key messages

The key messages of the week are:

• Haemochromatosis is a common inherited iron overload disorder.

• You know too little iron can be bad for your health.
Did you know that too much iron can also be bad for you?

• Iron overload may lead to serious medical problems. The good news is that it is easily treated if detected early and is no barrier to a normal, healthy life.

• If you know someone in your family has haemochromatosis, or you have been feeling tired and aching for an extended period, talk to your GP about haemochromatosis

Resources and Information

Posters

We will be mailing copies of our posters to all members in mid-July.

You can also download and print a copy from the links below

Poster 1 – Are you pumping too much iron?

Poster 2 – Tired and aching joints

Poster 3 – Celtic ancestry

or you can email publications@ha.org.au or give us a call on 1300 019 028.

Booklets and Brochures

You can download copies here:

• Haemochromatosis Your Questions Answered

• Haemochromatosis brochure

or you can email publications@ha.org.au or give us a call on 1300 019 028 if you would like us to send you bulk print copies.

Resource Kits

You can also order a haemochromatosis Awareness Week resource kit containing

• Posters

• Haemochromatosis Your Questions Answered booklets

• Haemochromatosis brochures

• Balloons and pens

Videos

You can access our videos on YouTube or contact us and we will post you a DVD if you would like to play the videos during an event or in a display.

Public Events

2nd Biennial Australasian Haemochromatosis Conference
6 – 7 August 2016
QIMR Berghofer Medical research Institute, Brisbane
Website: www.haemochromatosis.org.au/conference2016

OVERLOAD Art Exhibition

OVERLOAD is a public art exhibition to raise awareness of haemochromatosis. Many of the works by talented Tasmanian artists have an ‘Overload’ theme. A portion of commission on all sales is donated to help Haemochromatosis Australia fund its awareness raising activities.

If you live or visit Hobart or northern Tasmania, pop in and check out these wonderful exhibitions.

Read more about OVERLOAD exhibitions here.

Hobart
The Stable Gallery, Cooleys Hotel, Main Rd, Moonah TAS
Official opening Friday 5 August at 6pm
Exhibition runs until end September.

Deloraine
Deloraine Community Health Centre
17 East Barrack St, Deloraine
Open until 5 November Official opening was Friday 29 July 2016

Contact Us

To order resources email publications@ha.org.au

If you would like to discuss an idea for raising awareness or would like some help or advice about running an event or activity during the week, email admin@ha.org.au or call our INFO LINE 1300 019 028.